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Isolation and Depression in RP

Isolation and Depression in RP

We’ve covered, to some extent, the fear of going blind, but fear doesn’t come to us on its own, it usually brings along its twin brothers isolation and depression.  It doesn’t matter which one turns up first, each will most likely arrive at some point during your journey to blindness.  As with all things we find a challenge, if we examine t carefully and break it down into its parts, it’s easier to deal with and not nearly as scary…

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The Blind Bucket List – 11 June, 2018

The Blind Bucket List – 11 June, 2018

Blind Bucket List – Week One (May 30- June 11th) It’s been a little over a week since I arrived in Ireland, but I will keep updating my adventures on Mondays, and will still be bringing you an article every Friday while I’m away.  I was a bit late this week with the regular Friday article – it shouldn’t happen again, just a few hiccups in the adjustment period.  Jet lag set in last Saturday, but I think it’s finally…

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Scotomaphobia – When the Fear is Based on Reality

Scotomaphobia – When the Fear is Based on Reality

Lately, I’ve been hearing a lot of people in the RP community discussing the fear of going blind, also known as Scotomaphobia.  A phobia implies an irrational fear, but what do you call it when you are going blind?  It is not irrational, it is a legitimate fear of the future and how blindness will inevitably change your life. I’m not sure when the fear first sets in.  When you are first diagnosed with a degenerative eye disease, you can…

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The Bucket List Begins With a Detour

The Bucket List Begins With a Detour

The Blind Bucket List is getting off to a crazy start, but I’m finally in Belfast, Northern Ireland.  It is really important to keep your sense of humour and remain flexible while travelling.  It seemed to take forever to get my passport, then there was a threat of a pilot strike with the airline I chose, and then a flight detour due to inclement weather……It’s been an experience. I boarded the airplane in Edmonton, Alberta, Canada and had a pleasant…

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Sensory Gardens: Nature for All the Senses

Sensory Gardens: Nature for All the Senses

Spring has sprung, and the garden awaits.  It’s that time of year again.  The sun is out and it’s time to get outside and exercise our green thumbs.  This year, as you plant your own garden or visit others, consider the various senses that a garden can speak to. Sight:  We all know that gardens can be quite beautiful.  The many shades of green in the leaves, the vast cornucopia of colours, shapes and sizes of flowers are a sight…

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Orphan Diseases and Research Funding

Orphan Diseases and Research Funding

An orphan disease is usually a rare disease and has difficulty securing research funding due to its nature.  If the disease is rare enough and there is no money in the cure or treatment of the disease, pharmaceutical companies won’t invest in the research and the residual funding sources are much smaller with a lot more competing interest.  First, let’s get into the definitions. Medical Definition of an Orphan Disease Orphan disease: A disease that has not been adopted by the…

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Update on the Blind Bucket List

Update on the Blind Bucket List

Delays, delays, and more delays. That seems to be the theme of this trip. After having to jump through hoops to get my passport back up to date, I just found out that the airline I booked my flight with, well, the pilots have voted to go on strike. It begs the question: Am I ever going to get this show on the road? Maybe I should just get a paddle boat and start walking! But, despite all of this,…

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RP and Chinese Medicine: Not a Cure but a Possible Treatment

RP and Chinese Medicine: Not a Cure but a Possible Treatment

Can Chinese medicine offer a treatment for RP?  With hundreds of video testimonials attesting to the success of his treatment, Dr. Weidong Yu of Wellspring Clinic for Holistic Medicine has been on my radar for years.  I recently went to visit Dr. Yu’s Clinic to find out more.  He was very gracious and encouraged me to talk to many of the patients who were in the clinic being treated that day.  I’ve summarized what I learned  below: RP Tunnel of…

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Tips for Disabled Job Seekers Part 3

Tips for Disabled Job Seekers Part 3

Finding or Creating Opportunities When we talk about finding and creating opportunities for ourselves we must start by deciding what is right for us.  Will we work full time or part-time?  Will we go to a place of work or work from home? What are our skills, interests and experience and what kind of work can we do with both our unique background and with our disability? Creating Opportunities In order to find the right situation for yourself, you want…

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Tips for Disabled Job Seekers Part 2

Tips for Disabled Job Seekers Part 2

Last week we talked about making the case to the employer for hiring persons with disabilities and best practices in communication.  This week we’ll be discussing disclosure and accommodation. Disclosure One of the toughest questions for anyone with a disability is when and how much to disclose to an employer or potential employer.  This is especially tough for those of us with disabilities that aren’t obvious.  We look like anyone else walking down the street.  It isn’t until we come…

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